Research title: PAthwAy of Dyspneic patIent in Emergency (PArADIsE)

Application for CNIL authorisation n° 920208 

 

Monocentric research on retrospective data

Name and address of the controller: CHRU de Nancy - 29, avenue du Maréchal de Lattre de Tassigny - 54035 NANCY cedex

 

Purpose of the research

You were treated for acute dyspnoea at the Nancy University Hospital between January 2010 and January 2020.

Your health care data will be reused in the framework of the Paradise clinical research project, whose objective is to evaluate the factors associated with the evolution of the health status of patients treated for acute dyspnoea at the Nancy University Hospital.

The members of your care team, as well as any person accessing your administrative, social and medical data, are bound by professional secrecy and respect your privacy.

The Nancy CHRU has appointed a Data Protection Officer (DPO).

 

Nature of the data collected

For the purposes of this research, your personal data from your medical and administrative file such as (demographic data, diagnoses, treatments, medical images, comorbidities, ...) will be reused in the framework of this research. Data relating to vital status will be sought from the Centre de recherche en Epidémiologie et Santé des Populations (CESP), Inserm Unit.

 

Information on the processing of your personal data

In the context of this research, your personal data will be collected in a database to enable the results of the research to be analysed in the light of its purpose, under conditions that guarantee their confidentiality.

The members of your care team, research staff and any person accessing your administrative, social and medical data are bound by professional secrecy and respect your privacy.

 

Your personal data will be kept in the information systems of the controller, the investigating centre or the professional involved in the research for up to five years after final validation of the data (freezing of the research database).

 

If you have any questions about your personal data and wish to exercise your rights*, you can contact the Data Protection Officer (DPO) of the Nancy CHRU by e-mail or post at the following address

Nancy University Hospital

Data Protection Officer (DPO)

29 Avenue du Maréchal de Lattre de Tassigny - CO60034 - 54035 NANCY Cedex

Mail: dporecherche@chru-nancy.fr

 

If you feel, after having contacted it, that your rights with regard to information technology and civil liberties have not been respected, the Commission Nationale de l'Informatique et des Libertés - CNIL (French authority for the control of personal data) may receive your complaint on its website: https: //www.cnil.fr/fr/webform/adresser-une-plainte

 

Regulation (EU) 2016/679 on the protection of personal data and Law No. 78-17 of 6 January 1978 on data processing, files and freedoms, as amended: rights of access, rectification, deletion, limitation of processing, portability, advance directives, right of opposition in compliance with the provisions of the Public Health Code, right to file a complaint with the CNIL.